I have boiled the kettle three times
When I have finished this one thing I'll make that cup of tea.
It has been a while. I want to put my headphones on for music but I’ve just washed my hair. I don’t want the Call Centre Ridge. Not today. But I’m also sat in an oversized jumper and men’s pyjama bottoms. Who am I trying to impress?
A lot but nothing has happened since my last post. I’m never more grateful for living in rural Ireland than I am now. Now, if I could win the lottery so I can set up wind and solar to battery storage I’d be even more happier.
It is bizarre to even be considering cancelling our Salute trip in April because we might not be able to afford the fuel. And who knows, the ferry companies might not either. Worst case scenario we buy vegetable oil and drive the van over. Aldi is selling it at 1.49 a litre.
It really has been a year (and a bit) for the car. Slimer lost a wing mirror, and then had relationships with a grass bank. The latter was one of those hilarious slow crashes where you just have to let it happen. He is all fixed now. I should rename him to Trigger’s Broom.
We have a favourite petrol station in Mallow, Ireland. They have closed down while all this price gouging and shite is happening. They said they want no part in ripping off people. So will open again when it’s back to “normal”. It is worth saying they are regularly 3 or 4 cents below everyone else any way. Sound lads.
Tomorrow I finally start my biologic infusion for Ulcerative Colitis. It’s three hours in a day ward, one hour to make sure I don’t have any issues. What would I consider a success for this treatment? Energy levels. I can handle the irregular and chaotic bowel movements. But if I can just get a few more hours a day, and the brain fog gone I would be so happy. My Vortioxetine and Lamotrogine have been working overtime since 2024.
Big shout out to my GP. He never stopped trying to find a reason for the fatigue, and even started some really intensive documentation so any future disability claim would go smoother. And he always said from the start he was sure it was autoimmune. Yes, I had to go in to A&E with GI bleeding to get it seen but that’s the nature of ‘flare up’ diseases. You have to see them to diagnose.
It’s not a smoking gun. And because this fatigue has been with me for so long it won’t go away completely. My body has got used to it. But any improvement is such a fucking win.
I put my headphones on.